Resources

Intellectual and Developmental Disabilities (I/DDs) are differences that are usually present at birth and that uniquely affect the trajectory of the individual’s physical, intellectual, and/or emotional development. Many of these conditions affect multiple body parts or systems (National Institutes of Health.

Some examples of intellectual and developmental disabilities may be, but not limited to, autism spectrum disorders (ASDs), Cerebral palsy, Down Syndrome, Fragile X Syndrome,Prader-Willi Syndrome (PWS).

Learn More:

https://www.nichd.nih.gov/health/topics/iddsz

https://www.cdc.gov/child-development/about/developmental-disability-basics.html

• Information and resources to access I/DD services and other benefits in NC: Accessing I/DD Services in NC

• Alternatives to guardianship and resources that promote the least restrictive decision-making supports: Decision-Making Support Options in NC

• Tailored Plans are the only Medicaid health plan that offer the NC Innovations Waiver or Traumatic Brain Injury (TBI) Waiver. You must have a Tailored Plan to access these waiver services.

Need help?

Call the Local Management Entity/Managed Care Organization (LME/MCO) that serves your county.

LME/MCO Directory

The NC Innovations Waiver is a Federally approved 1915 C Medicaid Home and Community-Based Services Waiver (HCBS Waiver) designed to meet the needs of Individuals with Intellectual or Development Disabilities (I/DD) who prefer to get long-term care services and supports in their home or community, rather than in an institutional setting.

Services included with the NC Innovations Waiver

More Information:
NC Innovations Waiver Flyer (PDF)

How to Get the NC Innovations Waiver (PDF)

Applying and joining the waitlist:
How to Apply for the NC Innovations Waiver

If you or a loved one is in need of services in North Carolina, contact the Division of Mental Health, Developmental Disabilities and Substance Abuse Services Customer Services:

Email: IDDListeningSessions@dhhs.nc.gov
Call: (855) 262-1946
Website

Find Services Search Tool: https://worktogethernc.com/services/

Resources for parents:
https://disabilityadvice.org/child-disability/

https://www.ecac-parentcenter.org/